Addi’s mother, Seabrook Phillips, will never forget the day she and Addi’s father, Philip Phillips, learned their daughter’s diagnosis. It explained so many things – why Addi was slow to start sitting and standing as a baby, why she hadn’t walked until age 2 and why she simply couldn’t keep up with her peers as she got older.
“What hit us hard was in kindergarten when the PE teacher called me,” Seabrook Phillips says. “The teacher said, ‘Listen, something is going on with her. She’s unable to skip and run and play with the other kids.’”
When the family finally got a diagnosis, it was difficult news to swallow. Seabrook and Philip Phillips are both former collegiate athletes and had always assumed their children would have the chance to participate in sports.
Far more unsettling was the realization their beautiful little girl would be faced with the condition and all of its implications for the rest of her life.
“As parents, we want to fix things, but there is no magic pill,” Seabrook Phillips says. “Addi is just going to have to get stronger, and she will learn how to answer the questions. We sit and talk to her about what she has – we want her to be educated so she can answer those questions about why she can’t do things that other people can.”